It's 8:30 am on Sunday 23rd January and the information we have been getting from our doctors is starting to sink in a bit. Jonathan pains - which had stopped and was markedly reduced about a week or two ago are returning. This is not helping my mood because it makes it difficult for me, for us.
Here are my thoughts from yesterday:
We had three main things we wanted to get done on Saturday and I'm glad we did get it all done. The first was to clean up the apartment, go to church - because the mass intention was for Jonathan and lastly, go to Chuck E Cheeses.
It's 1:15 pm on Saturday 22nd January and we've just left by our friends to drive up to our apartment. We had decided that we would all go in our uncle vehicle so we wouldn't have to go in two vehicles and it gives the kids another think to be happy about because they are traveling in a different car. We got home around 2:30 pm and we started to clean. Gabby's parents are coming up on Wednesday and we wanted to make sure we had the apartment in some sort of 'presentable' condition before they arrive. We also wanted to move the bed from the study into the kids bedroom so Gabby's parents could get a 'better' room to use. Since the kids don't sleep in their bedroom anymore - but with us - Gabby's parents would get the room all to their selves - minus the kids toys (smile).
It was really great having our uncle and aunt to help since we were able to get a lot done in a short space of time. As usually, towards the end I was on the phone - and lately I've been getting jokes that I should have a phone and / or a computer attached to my head so I'll be connected all the time (smile). So I finished my phone call and we left at 4:30 pm to head over to church. We reached at 5:02 pm, which meant that mass had already started so the question is did we reach late because I was on the phone and kept everyone back or did my uncle drive too slow? (smile). The good thing about my uncle is that he likes to give jokes but he could receive them just as great as well (smile).
During mass, when the prayers for the people were being said, I was telling Jonathan to listen. He was laying in my arms and listening. He heard his name and he had this smile on his face that he normally puts when he is trying to hid a smile. It's the kind of smile that he uses when he wants to blush as well. When we reached the end of mass and they were getting ready to read the announcements - the priest called my name - "Walter - where are you?". I raised my hand so he could see me. The priest says, "Walter - could you bring Jonathan up here?". I'm a little surprised and I leaned over to pick up Jonathan since he was sitting on Gabby's lap. At first he started to fuss but when I lifted him up into my arms he was all quiet. I walked up to the front of the altar by the priest. The priest asked the entire congregation to remember this child and his family in their prayers - that he was a stage 4 patient. It brought tears to my eyes but I quickly got that under control.
After mass we got the sacrament of the sick administered to Jonathan. We also saw a nun and she told me something very nice, "We are shouting down at heaven's door". I knew the entire school was praying for him and I knew what she mean - since I had all my friends and family knocking at heaven's door, making a lot of noise for this boy who was my son.
After church we went over the Chuck E Cheeses. Jonathan's pains were coming back - in his legs. We also had to be careful picking him up as well - since sometime his back would hurt - we are guessing the reason is because it may be close to his kidneys - where the majority of the tumor is located. As I say this - I remember one time thinking back to the movie "The Chronicles of Riddick" and the bad guy - how he can make his body go though another body - and thinking I wish I could do the same and just pluck out this cancer.
Going back to the present - it is now 9:30 am on Sunday and I have to abruptly conclude this journal entry because Jonathan's pains are increasing and we are considering calling the pediatric Oncologist on call.
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