It's 12:29 pm and we are at the doctor's office right now. We saw the Oncologist and we're waiting while she checks his lab work (the ultrasound) to see if they can arrange some tests today. Although I have not journaled it as yet ... I need to record it so I'll be able to remember it accurately. Based on what were seen from the ultrasound there are about three possibilities of what Jonathan may have. The one that the doctors' think is most likely is something called Neuroblastoma. The second possibility is called Wilms Tumor and the third is an infectious mass.
Speaking with the Oncologist - I can tell she is concern because one of the things she is worried about are the pains Jonathan has been having in his leg and through-out his body. Sometimes this could be a sign that the tumor or cancer has spread or is beginning to spread. I hope they are wrong - but you can sometimes look at a doctor and try as they might to hid it - you can still suspect when they are worried.
The plan now is to get a CAT scan, a bone scan and then based on these results - a biopsy. The unfortunate thing is that Jonathan will have to get anaesthetic or go under in order to get these test done. The primary reason is that Jonathan may not stay quiet for these tests and these tests take a while to do. The CAT scan takes about 20 minutes and the bone scan takes about 60 minutes.
Looking at Jonathan - we've come to realize that he is worried. Not worried like adults would be - but probably afraid because he does not know what is going on. While we were speaking with the Oncologist - Jonathan decided he wanted to leave to go and play with the toys in the waiting room. It was more of him wanting to get out of a situation rather than just wanting to play with the toys.
I've realized now I need to start doing more research. I want to learn more about chemotherapy. I want to learn more cancers and the possible treatment. The good thing is that our Oncologist was telling us we should remove any thoughts or impressions we have on chemotherapy since chemotherapy for adults is totally different to chemotherapy for children. Generally children react much better to chemotherapy treatment than adults and plus with their young bodies they are able to heal and respond better to the treatment.
We've been waiting for 20 minutes and I'm hoping that we can get the CAT scan done today. I'm really hoping to start getting some news - hopefully positive - on Jonathan's condition so we can determine the way forward. The lack of information with the various permutations and combination is frustration and makes us so anxious.
I'm also thinking about Gabby - and hoping that she holds up well. I could just imagine the internal struggles that must be going on her mind.
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