Jonathan's autologous stem cell transplant was last week Thursday. Originally I was not planning to be there but I got a call from Gabby around 10 am in which she was asking me if I was coming. Apparently they had setup a lot of equipment in the event that Jonathan had a seizure or things didn't go well during the transplant. I guess with all the 'extra' activity, Gabby got a little nervous and our previous expectation about the transplant being an easy process got thrown out the window.
Since I was still home - I decided to take the day off from work so I can be there during the transplant. The actually transplant is really a similar procedure to when a patient is receiving blood and our initial expectation was that it would take just as long, about 3 hours. The transplant itself started at 11 am but I didn't reach the hospital until 11:30 am. By the time I arrived the most of the stem cells were already inside of Jonathan so I reached for the ending portion of the procedure with everything finishing about 5 minutes after I arrived.
The transplant procedure went well - and Jonathan didn't have any adverse effects. What was interesting was that it was only the day before (Wednesday) that his counts finally got low enough for him to be classified as neutropenic, i.e. no white blood cells so no immune system to fight off any diseases. So in Jonathan's case he was lucky that he was able to go out of his room for the first five to six days of his stay. The doctors were expecting him to be neutropenic after the third day (for the least). Of course I'm not complaining since it allowed Jonathan to have some more play time and fun but looking at him now - it's a big contrast.
I cannot remember clearly - but I believe by Thursday the sores in his mouth, throat and stomach got so bad that we already had Jonathan hooked up to receive pain medication all the time. By Friday his fevers started and Jonathan has been spending his days having fevers and battling the pain in his digestive system.
On Friday morning I got a call from Gabby that she woke up with a sore throat and this was bummer news. It meant that she couldn't stay with Jonathan and thus I had to extend my PTO until she recovered. By Sunday, Gabby was beginning to feel better and by Monday we decided that she could spend Monday night with Jonathan and I could return to work. This was a good thing too, because, besides the amount of PTO I was taking (which is always negative in my case), I was not getting much sleep in the hospital. Every hour or so, Jonathan would be whimpering in pain and I would be needed to help him relieve the pain - either pushing the 'button' to get more pain medicines, helping him spit, rubbing vicks on his neck, etc...
By Monday I was completely exhausted. Fortunately I was not cranky - just exhausted. I was also fearing that I was getting sick but after a good nights rest - I woke up this morning feeling fine. Of course I could have done with a bit more sleep - at least another two hours - but got to get to work today.
So ... the doctors estimate that Jonathan has another week of going through this terrible period and hopefully by the end of next week his stem cells will have taken root and his body will start back producing white and red blood cells and platelets. Right now Jonathan is receiving a transfusion once a day. One day he'll get platelets and the other day he'll get blood. Since his body cannot produce any of it, i.e. because there is no bone marrow - he needs to get a supply while we wait for his stem cells to take root.

