Gabby is still at the hospital - having been there since Monday night. She's had plenty of drama over the last 36 hours! On Tuesday - Jonathan's hickman (his catheter that goes into his chest for him to get his medication) broke! Originally they thought the blood they were seeing on the bed was from his mouth - but Gabby saw some white stuff (his fat emulsion) on his chest area and on further checking they realize that he had a hole in his catheter. Gabby started to think the worse - because at first sign - we didn't know that these things could be repaired. We thought that Jonathan had to go in for surgery to get the old catheter removed and a new placed.
So after using the repair kit - they realized that it was not placed correctly - that it was still leaking. When the second attempt was made - they realize that they didn't have any more repair kits for the size of Jonathan's catheter and the nearest one was available in the south bay - so we had to wait until the afternoon before they tried the second repair. It's after 8 am and Gabby tells me that after the second repair they realize that there was a block in the line that was not dissolving when they use TPA (kind of like DrainO for the taps) so they decided to do a third repair last night and everything seems to be going okay now. No more leaks, no more clogs. The only thing is that each time a repair was done, his line was cut closer and closer to the incision point where the line goes into his body to be connected to his blood vessel. So the hope is that we have no more 'accidents' with his line until he is done - because we are not too excited about the prospect of another surgery right now.
Switching topics now - this if the fourth day I've been off of my anti-depressants. I voluntary came of those medications and I'm only take antacids and sleeping pills right now. I'm not sure how wise this decision is, but even after I had my dose doubled - I still felt it was not helping - I still had to take sleeping pills - so I decided that I didn't want my dose increased again and decided to come off of it. If I tell me boss off or do something stupid at the hospital - then I'll know this was an unwise decision. I already felt my anger levels rising yesterday when I visited Jonathan in the hospital and so I decided not to stay too long. I'm slowly getting zero tolerance for the lack of improvement in some areas - but it's fortunate that these areas are very minimal and insignificant. I must say - this has been the first rounds of procedures where I don't have to be double checking anything and I'm completely relaxed that all his medicines are being administered by the correct time, etc...
So ... other than me coming off my medication on Monday - I also played hooky from the office yesterday. Arielle (and Jonathan) got invited to a birthday party on Wednesday from 10:30 am to 12:45 pm and originally Gabrielle was suppose to take Arielle but with my feeling like I'm coming down with the 'cold' - I decided to take it. It was such a nice event - sometimes I forget that there is more to life than the 8 to 5 grind (or as my office does it - 9 to 7 for six or seven days a week). The original plan was to stay at the party until 11:30 am and then take Arielle home and head up to the office - but I guess with my being off my medications and other factors I was in such a funky mood that by the time I left the party it was 1 pm. We then decided to head up to the hospital to see Jonathan and then head home.
I've come to realize that once my daily pattern gets broken - then it's real difficult to go to work. So 'relatively' bright and early this morning - I'm on the 8:04 am 'baby bullet' train heading to San Francisco to put in my 8 hours of work. It's unfortunate though, because Jonathan was asking to see Daddy this morning and is quite upset that I'm not spending any great amount of time - but if I only go there this morning - I don't know what time I'll be reaching into the office. I'm slowly starting to consider other options or ways to make my work life more flexible and hopefully a solution presents itself real soon.
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