PET Scan Scheduled

We learnt on Thursday that Jonathan's PET scan is scheduled for next week Wednesday. Unlike the MIBG Scan, which is either a two or three day affair, the PET scan is a one day event. Jonathan will get the contrast or some type of isotope at 1 PM, and the scan follows immediately at 1:30 PM. I'm not holding my breath that the PET scan will be extremely helpful because either news is a mixed blessing. If the scan comes back negative, we don't know if that means there are tumor cells that are undetected by the PET scan, or whether the tumor cells are detected and there are no more tumor cells. We don't (currently) have a way to tell whether there are any tumor cells, my suspicions are that they are probably too small.

Jonathan had another round of MIBG scans this week, i.e. on Thursday, September 10th, and my expectation, like the February scans, is for the results to come back negative. If the results (from the MIBG scans) do come back positive, then this would be good data to help us figure out whether the PET scans are a useful testing procedure or not.

Whew! So I go back to my earlier statement, any news we receive will be a mixed blessing. :).

We meet with the medical team next week Friday, September 18th. I'm hoping the meeting will be to review the results of both scans AND also start the 13-cis-retinoic acid, aka Accutane treatment. Here is looking forward to another "adventurous" week :).