It's Tuesday afternoon and Jonathan is on the computer on Disney.com website. He loves Disney Playhouse and the things they have on the website are really nice for kids. Other than Disney, he also plays on Sesame Street and Noggin, but I think Disney and Sesame Street are his favorite. Jonathan woke up this morning very quiet. Whenever Jonathan is quiet it usually means he is not feeling well. By lunch time he had another episode of throwing up - but then he perked up right away. Up to now he has only thrown up once - so that is good. Yesterday was a bit rough for him - he threw up about four times - although he went through the weekend just fine. Yesterday we also went to the clinic for his blood to be drawn for labs. His counts are going really well - his white blood count (WBC) was at 5.5 instead of 0.2 so he is doing very well. His platelets were a bit low - but not low enough to warrant a platelet transfusion.
Whenever we go to the clinic I also ask them to give him some anti-nausea medicines because this way he can get it through his catheter instead of taking it into this stomach. There is also another drug he can get at the clinic that we cannot take home - hence another reason for making full use of our visit to the clinic. The weekend was spent really nice. We had a bar-b-que on Sunday with the kids 'helping out'. Their version of helping out was watching since we have not bar-b-q in years.
We have also received some good news over the last four days. Jonathan's stem cell collection results came back. His stem cell collection is tumor free and the amount of stem cells remaining after the purging process is sufficient enough for his transplant. This means that the stem cells they collected from Jonathan after his second induction phase is okay to use so we don't have to another stem cell collection - yippe! The other bit of good news is that the 'Make a Wish' Foundation approved Jonathan's wish to go to Disney World. So sometime towards the end of the year we will all be going to Disney World. Our plan is to wait until his active treatment is finished so we can use the trip as a celebration! If anything changes with Jonathan's condition then we will consider moving up the trip - but the current plan is to wait until the end - because we know he'll be cured! One of the reasons for choosing Disney World instead of Disneyland is that we were hoping our relatives would be able to make the trip with us ... so we chose a location that will be closer - instead of all the way in California.
All in all ... it has been a good couple of days. Jonathan's nausea seems to be waning and I'm hoping by tomorrow it is all gone as we'll like to do some outdoor activities towards the end of the week before he goes back in for his fourth round of treatment. My thanks for the parents of the Pre-K students from Jonathan class for helping us over the last week and continuing to help us during the next couple of weeks. My thanks for all those continuing to pray for Jonathan and us.
2 comments:
I am so glad to hear that the nausea is finally slowing down. What a strong boy- his counts are holding up considerring. How exciting about the Disney World trip. It will be so fun to look forward to that! Stay strong, Jonathan!! You will conquer this!!
--Karen (mom to Dylan and Sasha)
Las Madres Los Gatos-Saratoga 2002, 2003 & KiDDs
Dear Walter and Gabby,
I thank God every day for His blessings and mercy for Johnathon and your family. I pray for Johnathon's full recovery according to His will, for He has promised us new life with the Easter joy! Love, Jill.
Please pray with me Pslam 139:1-14
"O Lord, you know me: you have scrutinized me.
You know when I sit and when I rise; from far away you discern my thoughts. You observe my activities and times of rest; you are familiar with all my ways.
Before a word is formed in my mouth, you know it entirely, O Lord,
From front to back you hedge me round, shielding me with your protecting hand.
Such marvels are beyond me, too lofty for me to attain.
Where else could I go from your Spirit? Where could I flee from your presence?
You are there if I ascend to the heavens; you are there if I descend to the depths. If I ride on the wings of the dawn and settle on the far side of the sea, even there your hand shall guide me and hour right hand shall hold me safely.
Shall I say, " Let darkness hide me and light become night about me?"
But darkness for you is not dark and night for you shines as the day.
It was you who formed my inmost part and knit me together in my mother's womb.
I thank you for the wonders you have done, and my heart praises you for your marvelous deeds."
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